Conference organized by The Boyne Research Institute in association with:
The Irish Cancer Society and PanCareSurFup.

The Boyne Research Institute is the Irish member of a consortium called PanCareSurFup. PanCare Childhood and Adolescent Cancer Survivor Care and Follow-up Studies is a 5-year research project which is funded through the 7th Framework Programme (FP7) of the European Commission, predicting the long-term side effects to cancer therapy.
Click here to download a copy of the PanCareSurFup brochure.

We are continually searching for new websites and organisations which may contain information to help you. If you feel that we are missing some links, or you would like to have your organisation listed on our site, please let us know.

For a copy of all the presentations from The First Irish Conference on Survivorship after Cancer during Childhood and Adolescence, Please click here

Networking Groups

We are in the process of developing networking groups for Irish survivors and their families. Communications primarily take place via group email discussions with discussions being controlled by a nominated group moderator. The current groups which we have are:

• Parents of recently diagnosed children
• Parents of long-term survivors
• Survivors of brain tumours
• Leukemia survivors
• Fatigue
• Teenage Survivors – what is out there for us?
• Bone marrow transplant survivors
• Long term survivors, over 25 years of age
• Brothers and sisters

If you would like to join these support networks, please email admin@ccs2011.ie or phone 041 98 36 041 to find out more. There is no fee involved to join these groups.

Detailed below are some useful links from Ireland, Europe and America in relation to survivorship, support groups and information regarding late effects.

Support Groups in Ireland for Families, Children and Teenagers:
CanTeen Ireland
Hand in Hand
Barretstown Castle
Jimmyteens.tv

Useful Irish Websites:
Boyne Research Institute
Irish Cancer Society
Chidlren’s Medical and Research Foundation
Crumlin Children’s Hospital
Temple Street Children’s University Hospital

Useful European Websites:
Pancare
Is a multidisciplinary pan‐European network of professionals, survivors and their families which aims to reduce the frequency, severity and impact of late side‐effects of the treatment of children and adolescents with cancer. Most European countries are represented.

PanCareSurFup
Is a grouping of 16 European institutions, funded by the 7th Framework Programme of the European Community, to carry out research studies into late effects of treatment for cancer and to establish guidelines for follow-up care.

SIOPE
Is a European organisation aimed at promoting optimal standards of care for children and young people with cancer.

Useful American Websites:
Children’s Oncology Group
The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers was developed as a collaborative effort of the Nursing Discipline and the Late Effects Committee and are maintained and updated by the Children’s Oncology Group’s Long-Term Follow-Up Guidelines Core Committee and its associated Task Forces.

Cancer Survivors Project
The Cancer Survivors Project is an organised, international community of long-term cancer survivors and their friends working together to improve the lives of children and adults after cancer.

ACOR.org
ACOR.org is an archive based website which allows any health topic on late effects and allows you to find older discussion topics. A very useful site for reading and learning about how other survivors have dealt with their health issues and concerns.

Memorial Sloan-Kettering Cancer Centre
Contains videos of selected meetings, lectures, and discussions designed to assist in adjustment to life after cancer treatment.